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myalgic encephalomyelitis (m.e.) is a long-term biomedical multi-system neurological illness. it is also an illness where, in the view of many professionals and patients alike, genuine scientific inquiry has been skewed by politics and vested interest - see below. m.e. clinical guidance & w.h.o. icd-10 classification call for parliamentary inquiry: call for new uk parliamentary inquiry contact parliament suggested letter text news / items of interest: critical overview of uk government 'cfs/me' policy leading nhs specialist on "seriously flawed" nice guidelines deeply flawed york/crd evidence review for nice complaint to lancet re mrc-funded pace study evaluating the controversial pace study bmj responses: pace trial - a fundamental misuse of statistics bmj: evidence based medicine in crisis - 1 bmj: evidence based medicine is broken - 2 legal / who: me is an organic disorder dna research versus psychiatric dogma professor wessely's assertions - right or wrong? countess mar re professor wessely peer-reviewed clinical guidance: international consensus panel criteria and primer accredited annual london medical/research conferences and resources nice guideline - cg53 concerns & legal challenge misguided psychiatry, tragic reality, coroner and autopsy "when a professional person - especially a doctor - has repeatedly been shown to be wrong in their professional judgement and, as a direct consequence, people have been harmed, that doctor should surely be held personally responsible and accountable : in such circumstances legitimate criticism should not be dismissed as an ad hominem (personal) attack." quotable quotes about me 2006 gsrme uk parliamentarian inquiry uk clinical & research centre proposal professor hooper & m williams me documents notice: in memoriam - dr terry mitchell - 1941 to 2015 about / disclaimer / contact: www.angliction.org.uk anglia me action () is a uk-based medico-political campaign. the website is designed to encourage and assist medical professionals, politicians, journalists and public to press for genuine evidence-based research, care and treatment, based upon genuine science-based patient selection criteria, for the who-icd-10-recognised biomedical multi-system illness known as myalgic encephalomyelitis/me. advisory - all campaigning should be conducted in an appropriate and non-threatening manner. however, to quote seasoned campaigner margaret williams : "when a professional person - especially a doctor - has repeatedly been shown to be wrong in their professional judgement and, as a direct consequence, people have been harmed, that doctor should surely be held personally responsible and accountable: in such circumstances legitimate criticism should not be dismissed as an ad hominem (personal) attack." disclaimer - please note: anglia me action campaigns in the field of medical politics but cannot and does not give medical advice to patients and carers . if you require such advice, strongly suggests that you seek it from qualified, informed and up-to-date specialist medical practitioners and not from this website. is not a social/ support group for patients. updates – please note: whilst anglia me action endeavours to ensure that information on this website is correct, because it has limited resources, cannot provide an up-to-the-minute bulletin-board and exhaustive fact-checking service. you are therefore urged to check and update information & references with other me organisations and elsewhere. contact – please note: unfortunately, b ecause anglia me action is a campaign platform with very limited resources, it is impossible to guarantee to read or respond to your emails . notwithstanding this limitation, constructive comment can be sent to: [email protected] myalgic encephalomyelitis (m.e.) overview: me defined: myalgic encephalo myelitis (myalgic= muscle-pain, encephalo= brain, myelitis= spinal-cord, encephalomyelitis= inflammation of brain & spinal-cord) is a long-term organic/ biomedical multi-system neurological illness. me is not a psychiatric or behavioural illness (see below) and has in fact appeared in the medical literature since the 1930s. me who icd-10 classification: me has been recognised by the who (world health organisation) since 1969 and classified as a neurological (biomedical) disorder in its international classification of diseases tenth revision (icd-10) at icd 10 -g93.3 . unfortunately, there have been many misguided and politically-driven misrepresentations of the who position and me terminology. to complicate matters further, some countries (germany and the usa, for example) have implemented or are implementing their own amended national “clinical modification” versions of the who icd: some of which affect the pvfs/me classification. most other countries however, including the uk, subscribe to the standard version of the who icd. a facsimile of the who icd-10-g93.3 classification is available here: www.angliction.org.uk/docs/who-icd-10-g93-3-facsimile.pdf general who icd upgrade: please note that the who is in the process of revising/upgrading and consulting upon its entire international classification of diseases under its eleventh revision (who icd 11). the who initially stated its timetable for this upgrade (which may or may not include substantial changes to pvfs/me) as follows but there have been very substantial delays and 2017 is now the earliest expected date of publication. readers are therefore advised to consult the who icd revision web pages directly at the below links : - icd-11 alpha draft: 10 may 2010. - icd-11 beta draft: 10 may 2011. - icd-11 final draft: 2014. for further information and updates on the eleventh revision of the international classification of diseases see: http://www.who.int/classifications/icd/icdrevision/en/index.html http://www.dxrevisionwatch.com/about the standard/unmodified who icd-10 primary tabular list permits the use of the following alternative name for ' postviral fatigue syndrome/pvfs' in its disease classification : 'benign myalgic encephalomyelitis/me’ . icd-10 classifies pvfs/me under diseases of the nervous system at section g93.3 ( other disorders of brain ) and nowhere else. in doing so it implicitly recognises the role of viral involvement in the disease and specifically excludes the disease from mental and behavioural disorders. the term 'chronic fatigue syndrome/cfs' is not entered/categorised anywhere in the icd-10 tabular list but is listed in the icd-10 alphabetical index as a term by which pvfs/me may be referred to: in clarifying this point to members of the uk me community, the who stated “cfs is a broad umbrella. this needs to be clarified. it is not possible to make a deduction from cfs. volume 1 is the relevant volume for me. me is classified at g93.3 and is a specific disorder. the term cfs covers many different conditions, which may or may not include me. the use of the term cfs in the icd index is merely colloquial and does not necessarily refer to me. it could be referring to any syndrome of chronic fatigue, not to me at all. the index (i.e. volume iii) cannot be taken as definitive. in its guideline, nice has used an ambiguous term. the who does not regognise the term 'cfs/me' and refers to its use as 'unfortunate'”. [dr robert jacob, medical officer (icd), classifications, terminologies and standards, who hq, geneva. 4 th february 2009. cited by professor malcolm hooper at:: http://www.meactionuk.org.uk/complaint-to-lancet-re-pace.htm again, some confusion has arisen here not only because some countries have their own “clinical modification” version of icd 10 but because the who did not put all of the details of their icd 10 th revision in their on-line website summary. for accuracy therefore, full reference needs to be made to the three-volume published/book version of icd 10 (especially the alphabetical index/volume 3 as well as the tabular list/volume 1) the bibliographic details of all thr

URL analysis for angliameaction.org.uk

http://www.angliameaction.org.uk/docs/definitions-and-guidance.pdf
http://www.angliameaction.org.uk/me-definitions
http://www.angliameaction.org.uk/docs/eame-nice-cg53-response-nov2010.pdf
http://www.angliameaction.org.uk/docs/magical-medicine.pdf
http://www.angliameaction.org.uk/docs/wessely-misleading.pdf
http://www.angliameaction.org.uk/docs/hooper-complaint-to-lancet-re-pace.pdf
http://www.angliameaction.org.uk/docs/dr-terry-mitchell.pdf
http://www.angliameaction.org.uk/docs/me-cfs-terminology.pdf
http://www.angliameaction.org.uk/docs/plaguethebook.pdf
http://www.angliameaction.org.uk/docs/inquiry-letter-text-2012.doc
http://www.angliameaction.org.uk/docs/proof-positive-revisited-september-2016.pdf
http://www.angliameaction.org.uk/docs/hooper-response-to-friedberg-15oct2016.pdf
http://www.angliameaction.org.uk/nicejrdocs/terry_mitchell_ws.pdf
http://www.angliameaction.org.uk/docs/williams-uk-government-strategy-for-cfs-me.pdf
http://www.angliameaction.org.uk/docs/last-word.pdf
voicesfromtheshadowsfilm.co.uk
sophiaandme.org.uk
amazon.co.uk
meresearch.org.uk
angliameaction.org.uk
meactionuk.org.uk
medicalhypotheses.blogspot.co.uk

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